Publicação
Economic burden of disease, financial toxicity, and social support: An empirical study of patients undergoing assisted reproductive technologies from the stakeholders' perspective
| Resumo: | The economic burden of disease and financial toxicity of patients undergoing assisted reproductive technology have become a global challenge, and there lacks authoritative measurement and assessment in this respect in China. In addition, the social support system is complex and variable. The asymmetric information has led to unbalanced supply and demand for support, and conflicting demands of multiple stakeholders have hindered the collaboration. Based on the theories of stakeholders, asymmetric information and social support, this study adopts mixed research methods to carry out in-depth exploration. In the quantitative study, an authoritative measurement and comparative analysis of economic burden is performed, and research on financial toxicity fills the gap in the field, revealing the mechanism of action of economic burden, financial toxicity and medical social support. It is also found that medical social support plays a negative moderating role in economic burden and financial toxicity. In the qualitative study, the negative moderating role of medical social support is revealed. It is found that stress and support come from the same source and the stigma-driven informationhiding behaviors affect support efficacy, and the conclusions provide a new perspective for explaining ambivalent moderation in the management of comparable chronic illnesses. Therefore, it is suggested to build a hierarchical and homogenous economic security system and an emotional support system based on patients’ needs, strengthen the information support system, and form a data-driven, transparent and open dynamic management mechanism. The research results provide an important decision-making basis for the construction of a social support system. |
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| Autores principais: | Geng Ling |
| Assunto: | RMA Reprodução Medicamente Assistida -- Medically assisted reproduction Economic burden Financial toxicity Apoio social -- Social support Encargos económicos Toxicidade financeira |
| Ano: | 2025 |
| País: | Portugal |
| Tipo de documento: | tese de doutoramento |
| Tipo de acesso: | acesso aberto |
| Instituição associada: | ISCTE |
| Idioma: | inglês |
| Origem: | Repositório ISCTE |
| Resumo: | The economic burden of disease and financial toxicity of patients undergoing assisted reproductive technology have become a global challenge, and there lacks authoritative measurement and assessment in this respect in China. In addition, the social support system is complex and variable. The asymmetric information has led to unbalanced supply and demand for support, and conflicting demands of multiple stakeholders have hindered the collaboration. Based on the theories of stakeholders, asymmetric information and social support, this study adopts mixed research methods to carry out in-depth exploration. In the quantitative study, an authoritative measurement and comparative analysis of economic burden is performed, and research on financial toxicity fills the gap in the field, revealing the mechanism of action of economic burden, financial toxicity and medical social support. It is also found that medical social support plays a negative moderating role in economic burden and financial toxicity. In the qualitative study, the negative moderating role of medical social support is revealed. It is found that stress and support come from the same source and the stigma-driven informationhiding behaviors affect support efficacy, and the conclusions provide a new perspective for explaining ambivalent moderation in the management of comparable chronic illnesses. Therefore, it is suggested to build a hierarchical and homogenous economic security system and an emotional support system based on patients’ needs, strengthen the information support system, and form a data-driven, transparent and open dynamic management mechanism. The research results provide an important decision-making basis for the construction of a social support system. |
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