Publicação
Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care
| Resumo: | Introduction: The Patient Dignity Question (PDQ) is a clinical tool developed with the aim of reinforcing the sense of personhood and dignity, enabling health care providers (HCPs) to see patients as people and not solely based on their illness. Objective: To study the acceptability and feasibility of the Portuguese version of the PDQ (PDQ-PT) in a sample of palliative care patients cared for in primary care (PC). Method: A cross-sectional study using 20 palliative patients cared for in a PC unit. A post-PDQ satisfaction questionnaire was developed. Results: Twenty participants were included, 75% were male; average age was 70 years old. Patients found the summary accurate, precise, and complete; all said that they would recommend the PDQ to others and want a copy of the summary placed on their family physician's medical chart. They felt the summary heightened their sense of dignity, considered it important that HCPs have access to the summary and indicated that this information could affect the way HCPs see and care for them. The PDQ-PT's took 7 min on average to answer, and 10 min to complete the summary. Significance of results: The PDQ-PT is well accepted and feasible to use with palliative patients in the context of PC and seems to be a promising tool to be implemented. Future trials are now warranted. |
|---|---|
| Autores principais: | Lemos Caldas, Mafalda |
| Outros Autores: | Julião, Miguel; Santos, Ana João; Chochinov, Harvey Max |
| Assunto: | Dignity Palliative care Patient Dignity Question Personhood Primary care |
| Ano: | 2020 |
| País: | Portugal |
| Tipo de documento: | artigo |
| Tipo de acesso: | acesso restrito |
| Instituição associada: | Universidade de Lisboa |
| Idioma: | inglês |
| Origem: | Repositório da Universidade de Lisboa |
| _version_ | 1865920767065063424 |
|---|---|
| author | Lemos Caldas, Mafalda |
| author2 | Julião, Miguel Santos, Ana João Chochinov, Harvey Max |
| author2_role | author author author |
| author_facet | Lemos Caldas, Mafalda Lemos Caldas, Mafalda Julião, Miguel Santos, Ana João Chochinov, Harvey Max Julião, Miguel Santos, Ana João Chochinov, Harvey Max |
| author_role | author |
| contributor_name_str_mv | Repositório Científico de Acesso Aberto da ULisboa |
| country_str | PT |
| creators_json_str | [{\"Person.name\":\"Lemos Caldas, Mafalda\",\"Person.identifier.orcid\":\"0000-0002-1374-1102\"},{\"Person.name\":\"Julião, Miguel\"},{\"Person.name\":\"Santos, Ana João\"},{\"Person.name\":\"Chochinov, Harvey Max\"}] |
| datacite.contributors.contributor.contributorName.fl_str_mv | Repositório Científico de Acesso Aberto da ULisboa |
| datacite.creators.creator.creatorName.fl_str_mv | Lemos Caldas, Mafalda Julião, Miguel Santos, Ana João Chochinov, Harvey Max |
| datacite.date.Accepted.fl_str_mv | 2020-01-01T00:00:00Z |
| datacite.date.available.fl_str_mv | 2021-04-20T15:04:32Z |
| datacite.date.embargoed.fl_str_mv | 2021-04-20T15:04:32Z |
| datacite.rights.fl_str_mv | http://purl.org/coar/access_right/c_16ec |
| datacite.subjects.subject.fl_str_mv | Dignity Palliative care Patient Dignity Question Personhood Primary care |
| datacite.titles.title.fl_str_mv | Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care |
| dc.contributor.none.fl_str_mv | Repositório Científico de Acesso Aberto da ULisboa |
| dc.creator.none.fl_str_mv | Lemos Caldas, Mafalda Julião, Miguel Santos, Ana João Chochinov, Harvey Max |
| dc.date.Accepted.fl_str_mv | 2020-01-01T00:00:00Z |
| dc.date.available.fl_str_mv | 2021-04-20T15:04:32Z |
| dc.date.embargoed.fl_str_mv | 2021-04-20T15:04:32Z |
| dc.format.none.fl_str_mv | application/pdf |
| dc.identifier.none.fl_str_mv | http://hdl.handle.net/10451/47491 |
| dc.language.none.fl_str_mv | eng |
| dc.publisher.none.fl_str_mv | Cambridge University Press |
| dc.rights.none.fl_str_mv | http://purl.org/coar/access_right/c_16ec |
| dc.subject.none.fl_str_mv | Dignity Palliative care Patient Dignity Question Personhood Primary care |
| dc.title.fl_str_mv | Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care |
| dc.type.none.fl_str_mv | http://purl.org/coar/resource_type/c_6501 |
| description | Introduction: The Patient Dignity Question (PDQ) is a clinical tool developed with the aim of reinforcing the sense of personhood and dignity, enabling health care providers (HCPs) to see patients as people and not solely based on their illness. Objective: To study the acceptability and feasibility of the Portuguese version of the PDQ (PDQ-PT) in a sample of palliative care patients cared for in primary care (PC). Method: A cross-sectional study using 20 palliative patients cared for in a PC unit. A post-PDQ satisfaction questionnaire was developed. Results: Twenty participants were included, 75% were male; average age was 70 years old. Patients found the summary accurate, precise, and complete; all said that they would recommend the PDQ to others and want a copy of the summary placed on their family physician's medical chart. They felt the summary heightened their sense of dignity, considered it important that HCPs have access to the summary and indicated that this information could affect the way HCPs see and care for them. The PDQ-PT's took 7 min on average to answer, and 10 min to complete the summary. Significance of results: The PDQ-PT is well accepted and feasible to use with palliative patients in the context of PC and seems to be a promising tool to be implemented. Future trials are now warranted. |
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| eu_rights_str_mv | restrictedAccess |
| format | article |
| fulltext.url.fl_str_mv | https://repositorio.ulisboa.pt/bitstreams/d1412d09-bd53-4cfc-8524-1ae9650bfcdf/download |
| id | ul_03f05db2a86fbcbaf021ff2a08da66e6 |
| identifier.url.fl_str_mv | http://hdl.handle.net/10451/47491 |
| instacron_str | ul |
| institution | Universidade de Lisboa |
| instname_str | Universidade de Lisboa |
| language | eng |
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| network_name_str | Repositório da Universidade de Lisboa |
| oai_identifier_str | oai:repositorio.ulisboa.pt:10451/47491 |
| organization_str_mv | urn:organizationAcronym:ul |
| person_str_mv | Lemos Caldas, Mafalda Lemos Caldas, Mafalda http://orcid.org/0000-0002-1374-1102 0000-0002-1374-1102 Julião, Miguel Santos, Ana João Chochinov, Harvey Max |
| publishDate | 2020 |
| publisher.none.fl_str_mv | Cambridge University Press |
| reponame_str | Repositório da Universidade de Lisboa |
| repository_id_str | urn:repositoryAcronym:ul |
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| spelling | engCambridge University Presspt_PTIntroduction: The Patient Dignity Question (PDQ) is a clinical tool developed with the aim of reinforcing the sense of personhood and dignity, enabling health care providers (HCPs) to see patients as people and not solely based on their illness. Objective: To study the acceptability and feasibility of the Portuguese version of the PDQ (PDQ-PT) in a sample of palliative care patients cared for in primary care (PC). Method: A cross-sectional study using 20 palliative patients cared for in a PC unit. A post-PDQ satisfaction questionnaire was developed. Results: Twenty participants were included, 75% were male; average age was 70 years old. Patients found the summary accurate, precise, and complete; all said that they would recommend the PDQ to others and want a copy of the summary placed on their family physician's medical chart. They felt the summary heightened their sense of dignity, considered it important that HCPs have access to the summary and indicated that this information could affect the way HCPs see and care for them. The PDQ-PT's took 7 min on average to answer, and 10 min to complete the summary. Significance of results: The PDQ-PT is well accepted and feasible to use with palliative patients in the context of PC and seems to be a promising tool to be implemented. Future trials are now warranted.application/pdfpt_PTPortuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary carePersonalLemos Caldas, MafaldaDSpacehttp://dspace.org/items/eaa4d8b9-6c45-4101-98a2-7185a775d901DSpacehttp://dspace.org/items/eaa4d8b9-6c45-4101-98a2-7185a775d901Lemos CaldasMafaldaORCIDhttp://orcid.org0000-0002-1374-1102Julião, MiguelSantos, Ana JoãoChochinov, Harvey MaxHostingInstitutionOrganizationalRepositório Científico de Acesso Aberto da ULisboae-mailmailto:repositorio@reitoria.ulisboa.ptrepositorio@reitoria.ulisboa.ptISSNIsPartOf1478-9515DOIIsPartOf10.1017/S14789515200001642021-04-20T15:04:32Z20202020-01-01T00:00:00ZHandlehttp://hdl.handle.net/10451/47491http://purl.org/coar/access_right/c_16ecrestricted accessDignityPalliative carePatient Dignity QuestionPersonhoodPrimary care135090 bytesliteraturehttp://purl.org/coar/resource_type/c_6501journal articlehttp://purl.org/coar/access_right/c_16ecapplication/pdffulltexthttps://repositorio.ulisboa.pt/bitstreams/d1412d09-bd53-4cfc-8524-1ae9650bfcdf/downloadPalliative and Supportive Care186658661 |
| spellingShingle | Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care Lemos Caldas, Mafalda Dignity Palliative care Patient Dignity Question Personhood Primary care Lemos Caldas, Mafalda Dignity Palliative care Patient Dignity Question Personhood Primary care |
| status | SINGLETON |
| subject.fl_str_mv | Dignity Palliative care Patient Dignity Question Personhood Primary care |
| title | Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care |
| title_full | Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care |
| title_fullStr | Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care |
| title_full_unstemmed | Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care |
| title_short | Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care |
| title_sort | Portuguese Patient Dignity Question : a cross-sectional study of palliative patients cared for in primary care |
| topic | Dignity Palliative care Patient Dignity Question Personhood Primary care |
| topic_facet | Dignity Palliative care Patient Dignity Question Personhood Primary care |
| url | http://hdl.handle.net/10451/47491 |
| visible | 1 |