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The safety and persistence of intravenous iloprost in systemic sclerosis

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Resumo:Introduction: Vasculopathy is a crucial feature of systemic sclerosis (SSc). It occurs in almost every patient with SSc, with Raynaud's phenomenon (RP) and digital ulcers (DU) having a great impact on the quality of patients' lives. Intravenous (IV) iloprost, a synthetic analogue of prostacyclin, is broadly used to treat RP and DU secondary to SSc. Currently, there is no standard protocol defined for the iloprost treatment of SSc-associated RP and DU, and, consequently, the management of this treatment is largely based on each centre's experience. Objective: The objective of this study is to evaluate the safety profile of a particular scheme of IV iloprost used in our centre as the standard treatment of SSc-related vascular complications. Methods: We retrospectively evaluated the clinical records of SSc patients, classified according to the 2013 European Alliance of Associations for Rheumatology (EULAR) criteria (31) with SSc-related DU and/or severe RP not responsive to CCB, receiving or who have received IV iloprost infusions from January 1st 2011 to March 31st 2021 Results: Within this time frame, 60 patients (n=44 for DU; n=16 for severe RP) were treated with a monthly 10-hour IV iloprost perfusion with a dosing regimen adapted to individual tolerance. Forty-nine of these 60 patients (81.7%) were on iloprost for more than one year. Within 12 months of therapy, 40 patients have healed the DUs (90.9%), with only 4 patients maintaining active DUs. A significant clinical improvement in RP at 12 months was observed in 87.5% (n=14/16) of SSc patients with severe RP. Eleven AE implying treatment dose/frequency adjustments or suspension were recorded (18.3% of patients): severe headache (n=5), hypotension (n=3), tachycardia (n=1), flushing (n=1) and generalised erythroderma (n=1). In all patients, the perfusion rate was reduced in the following treatment sessions with good tolerance, with the exception of the patient with the generalised erythroderma reaction, who suspended the perfusion and was later switched to bosentan. After a mean follow-up time of 6.9 (+/-) 4.0 years of treatment (range 0.06-22), 24 patients (40%) stopped the therapy, 14 (58.3%) of whom due to clinical improvement. The overall 5-, and 10-year survival rates of IV iloprost were 68.2% and 55.6%, respectively. Conclusion: SSc patients who received this flexible IV iloprost regimen achieved clinical improvement, reflected in the high persistence rate of the drug, with a good tolerability profile. In addition, most side effects were mild and easily managed.
Autores principais:Martins, Patrícia
Outros Autores:Dourado, Eduardo; Fonseca, João Eurico; Romão, Vasco C.; Resende, Catarina
Assunto:Scleroderma and related disorders Raynaud’s syndrome Iloprost
Ano:2022
País:Portugal
Tipo de documento:artigo
Tipo de acesso:acesso aberto
Instituição associada:Universidade de Lisboa
Idioma:inglês
Origem:Repositório da Universidade de Lisboa
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author Martins, Patrícia
author2 Dourado, Eduardo
Fonseca, João Eurico
Romão, Vasco C.
Resende, Catarina
author2_role author
author
author
author
author_facet Martins, Patrícia
Dourado, Eduardo
Fonseca, João Eurico
Romão, Vasco C.
Resende, Catarina
author_role author
contributor_name_str_mv Repositório Científico de Acesso Aberto da ULisboa
country_str PT
creators_json_txt [{\"Person.name\":\"Martins, Patrícia\",\"Person.identifier.orcid\":\"0000-0003-3578-7213\"},{\"Person.name\":\"Dourado, Eduardo\",\"Person.identifier.orcid\":\"0000-0003-2186-2833\"},{\"Person.name\":\"Fonseca, João Eurico\",\"Person.identifier.orcid\":\"0000-0003-1432-3671\"},{\"Person.name\":\"Romão, Vasco C.\",\"Person.identifier.orcid\":\"0000-0002-5603-9436\"},{\"Person.name\":\"Resende, Catarina\"}]
datacite.contributors.contributor.contributorName.fl_str_mv Repositório Científico de Acesso Aberto da ULisboa
datacite.creators.creator.creatorName.fl_str_mv Martins, Patrícia
Dourado, Eduardo
Fonseca, João Eurico
Romão, Vasco C.
Resende, Catarina
datacite.date.Accepted.fl_str_mv 2022-01-01T00:00:00Z
datacite.date.available.fl_str_mv 2023-06-09T13:56:24Z
datacite.date.embargoed.fl_str_mv 2023-06-09T13:56:24Z
datacite.rights.fl_str_mv http://purl.org/coar/access_right/c_abf2
datacite.subjects.subject.fl_str_mv Scleroderma and related disorders
Raynaud’s syndrome
Iloprost
datacite.titles.title.fl_str_mv The safety and persistence of intravenous iloprost in systemic sclerosis
dc.contributor.none.fl_str_mv Repositório Científico de Acesso Aberto da ULisboa
dc.creator.none.fl_str_mv Martins, Patrícia
Dourado, Eduardo
Fonseca, João Eurico
Romão, Vasco C.
Resende, Catarina
dc.date.Accepted.fl_str_mv 2022-01-01T00:00:00Z
dc.date.available.fl_str_mv 2023-06-09T13:56:24Z
dc.date.embargoed.fl_str_mv 2023-06-09T13:56:24Z
dc.format.none.fl_str_mv application/pdf
dc.identifier.none.fl_str_mv http://hdl.handle.net/10451/58143
dc.language.none.fl_str_mv eng
dc.publisher.none.fl_str_mv Sociedade Portuguesa de Reumatologia
dc.rights.cclincense.fl_str_mv http://creativecommons.org/licenses/by-nc-nd/4.0/
dc.rights.none.fl_str_mv http://purl.org/coar/access_right/c_abf2
dc.subject.none.fl_str_mv Scleroderma and related disorders
Raynaud’s syndrome
Iloprost
dc.title.fl_str_mv The safety and persistence of intravenous iloprost in systemic sclerosis
dc.type.none.fl_str_mv http://purl.org/coar/resource_type/c_6501
description Introduction: Vasculopathy is a crucial feature of systemic sclerosis (SSc). It occurs in almost every patient with SSc, with Raynaud's phenomenon (RP) and digital ulcers (DU) having a great impact on the quality of patients' lives. Intravenous (IV) iloprost, a synthetic analogue of prostacyclin, is broadly used to treat RP and DU secondary to SSc. Currently, there is no standard protocol defined for the iloprost treatment of SSc-associated RP and DU, and, consequently, the management of this treatment is largely based on each centre's experience. Objective: The objective of this study is to evaluate the safety profile of a particular scheme of IV iloprost used in our centre as the standard treatment of SSc-related vascular complications. Methods: We retrospectively evaluated the clinical records of SSc patients, classified according to the 2013 European Alliance of Associations for Rheumatology (EULAR) criteria (31) with SSc-related DU and/or severe RP not responsive to CCB, receiving or who have received IV iloprost infusions from January 1st 2011 to March 31st 2021 Results: Within this time frame, 60 patients (n=44 for DU; n=16 for severe RP) were treated with a monthly 10-hour IV iloprost perfusion with a dosing regimen adapted to individual tolerance. Forty-nine of these 60 patients (81.7%) were on iloprost for more than one year. Within 12 months of therapy, 40 patients have healed the DUs (90.9%), with only 4 patients maintaining active DUs. A significant clinical improvement in RP at 12 months was observed in 87.5% (n=14/16) of SSc patients with severe RP. Eleven AE implying treatment dose/frequency adjustments or suspension were recorded (18.3% of patients): severe headache (n=5), hypotension (n=3), tachycardia (n=1), flushing (n=1) and generalised erythroderma (n=1). In all patients, the perfusion rate was reduced in the following treatment sessions with good tolerance, with the exception of the patient with the generalised erythroderma reaction, who suspended the perfusion and was later switched to bosentan. After a mean follow-up time of 6.9 (+/-) 4.0 years of treatment (range 0.06-22), 24 patients (40%) stopped the therapy, 14 (58.3%) of whom due to clinical improvement. The overall 5-, and 10-year survival rates of IV iloprost were 68.2% and 55.6%, respectively. Conclusion: SSc patients who received this flexible IV iloprost regimen achieved clinical improvement, reflected in the high persistence rate of the drug, with a good tolerability profile. In addition, most side effects were mild and easily managed.
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oai_identifier_str oai:repositorio.ulisboa.pt:10451/58143
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person_str_mv Martins, Patrícia
Martins, Patrícia
http://orcid.org/0000-0003-3578-7213
0000-0003-3578-7213
Dourado, Eduardo
Dourado, Eduardo
https://www.ciencia-id.pt/531B-BA03-FCA0
531B-BA03-FCA0
http://orcid.org/0000-0003-2186-2833
0000-0003-2186-2833
Fonseca, João Eurico
Fonseca, João Eurico
https://www.ciencia-id.pt/F310-B85D-57C7
F310-B85D-57C7
http://orcid.org/0000-0003-1432-3671
0000-0003-1432-3671
Romão, Vasco C.
Romão, Vasco C.
https://www.ciencia-id.pt/771D-0A5C-626B
771D-0A5C-626B
http://orcid.org/0000-0002-5603-9436
0000-0002-5603-9436
Resende, Catarina
publishDate 2022
publisher.none.fl_str_mv Sociedade Portuguesa de Reumatologia
reponame_str Repositório da Universidade de Lisboa
repository_id_str urn:repositoryAcronym:ul
service_str_mv urn:repositoryAcronym:ul
spelling engSociedade Portuguesa de Reumatologiapt_PTIntroduction: Vasculopathy is a crucial feature of systemic sclerosis (SSc). It occurs in almost every patient with SSc, with Raynaud's phenomenon (RP) and digital ulcers (DU) having a great impact on the quality of patients' lives. Intravenous (IV) iloprost, a synthetic analogue of prostacyclin, is broadly used to treat RP and DU secondary to SSc. Currently, there is no standard protocol defined for the iloprost treatment of SSc-associated RP and DU, and, consequently, the management of this treatment is largely based on each centre's experience. Objective: The objective of this study is to evaluate the safety profile of a particular scheme of IV iloprost used in our centre as the standard treatment of SSc-related vascular complications. Methods: We retrospectively evaluated the clinical records of SSc patients, classified according to the 2013 European Alliance of Associations for Rheumatology (EULAR) criteria (31) with SSc-related DU and/or severe RP not responsive to CCB, receiving or who have received IV iloprost infusions from January 1st 2011 to March 31st 2021 Results: Within this time frame, 60 patients (n=44 for DU; n=16 for severe RP) were treated with a monthly 10-hour IV iloprost perfusion with a dosing regimen adapted to individual tolerance. Forty-nine of these 60 patients (81.7%) were on iloprost for more than one year. Within 12 months of therapy, 40 patients have healed the DUs (90.9%), with only 4 patients maintaining active DUs. A significant clinical improvement in RP at 12 months was observed in 87.5% (n=14/16) of SSc patients with severe RP. Eleven AE implying treatment dose/frequency adjustments or suspension were recorded (18.3% of patients): severe headache (n=5), hypotension (n=3), tachycardia (n=1), flushing (n=1) and generalised erythroderma (n=1). In all patients, the perfusion rate was reduced in the following treatment sessions with good tolerance, with the exception of the patient with the generalised erythroderma reaction, who suspended the perfusion and was later switched to bosentan. After a mean follow-up time of 6.9 (+/-) 4.0 years of treatment (range 0.06-22), 24 patients (40%) stopped the therapy, 14 (58.3%) of whom due to clinical improvement. The overall 5-, and 10-year survival rates of IV iloprost were 68.2% and 55.6%, respectively. Conclusion: SSc patients who received this flexible IV iloprost regimen achieved clinical improvement, reflected in the high persistence rate of the drug, with a good tolerability profile. In addition, most side effects were mild and easily managed.application/pdfpt_PTThe safety and persistence of intravenous iloprost in systemic sclerosisPersonalMartins, PatríciaDSpacehttp://dspace.org/items/28ce5691-575c-4bf4-9428-58ce9acefef7DSpacehttp://dspace.org/items/28ce5691-575c-4bf4-9428-58ce9acefef7MartinsPatríciaORCIDhttp://orcid.org0000-0003-3578-7213PersonalDourado, EduardoDSpacehttp://dspace.org/items/6ea62930-47c0-4ac2-a51c-7122f1f570a5DSpacehttp://dspace.org/items/6ea62930-47c0-4ac2-a51c-7122f1f570a5DOURADO DOMINGUESEDUARDO JORGECiência IDhttps://www.ciencia-id.pt531B-BA03-FCA0ORCIDhttp://orcid.org0000-0003-2186-2833PersonalFonseca, João EuricoDSpacehttp://dspace.org/items/1772dc12-7c55-4c76-ae2d-c23270172480DSpacehttp://dspace.org/items/1772dc12-7c55-4c76-ae2d-c23270172480FonsecaJoãoCiência IDhttps://www.ciencia-id.ptF310-B85D-57C7ORCIDhttp://orcid.org0000-0003-1432-3671Scopus Author IDhttps://www.scopus.com7101983519Scopus Author IDhttps://www.scopus.com55881559500PersonalRomão, Vasco C.DSpacehttp://dspace.org/items/e7e94139-add7-4a3b-b138-fb1d1a656b0eDSpacehttp://dspace.org/items/e7e94139-add7-4a3b-b138-fb1d1a656b0eC RomãoVascoCiência IDhttps://www.ciencia-id.pt771D-0A5C-626BORCIDhttp://orcid.org0000-0002-5603-9436Researcher IDhttps://www.researcherid.comO-8224-2014Scopus Author IDhttps://www.scopus.com55989452300Resende, CatarinaHostingInstitutionOrganizationalRepositório Científico de Acesso Aberto da ULisboae-mailmailto:repositorio@reitoria.ulisboa.ptrepositorio@reitoria.ulisboa.ptISSNIsPartOf2795-45522023-06-09T13:56:24Z20222022-01-01T00:00:00ZHandlehttp://hdl.handle.net/10451/58143http://purl.org/coar/access_right/c_abf2open accessScleroderma and related disordersRaynaud’s syndromeIloprost193948 bytesliteraturehttp://purl.org/coar/resource_type/c_6501journal article2022http://creativecommons.org/licenses/by-nc-nd/4.0/http://purl.org/coar/access_right/c_abf2application/pdffulltexthttps://repositorio.ulisboa.pt/bitstreams/0ef8a2a5-ca9b-4cd4-9630-9bdfc6bd3150/downloadARP Rheumatology21122128
spellingShingle The safety and persistence of intravenous iloprost in systemic sclerosis
Martins, Patrícia
Scleroderma and related disorders
Raynaud’s syndrome
Iloprost
status SINGLETON
subject.fl_str_mv Scleroderma and related disorders
Raynaud’s syndrome
Iloprost
title The safety and persistence of intravenous iloprost in systemic sclerosis
title_full The safety and persistence of intravenous iloprost in systemic sclerosis
title_fullStr The safety and persistence of intravenous iloprost in systemic sclerosis
title_full_unstemmed The safety and persistence of intravenous iloprost in systemic sclerosis
title_short The safety and persistence of intravenous iloprost in systemic sclerosis
title_sort The safety and persistence of intravenous iloprost in systemic sclerosis
topic Scleroderma and related disorders
Raynaud’s syndrome
Iloprost
topic_facet Scleroderma and related disorders
Raynaud’s syndrome
Iloprost
url http://hdl.handle.net/10451/58143
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