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Portuguese and the biobanks: profiles and attitudes of the Portuguese population towards biobanks for health research

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Detalhes bibliográficos
Resumo:Biobanks for clinical research collect human biological samples and associated data for biomedical research. The establishment of biobanks in Portugal is still an understudied phenomenon, although there are signs of a growing trend in setting up these repositories to support biomedical research. Among another factors, individuals’ willingness to donate samples and public trust in biobanks play a crucial role in sustaining biobanking activities. In this article, we analyse public attitudes in Portugal towards biobanking, based on data from the biotechnology survey conducted by Eurobarometer in 2010. Different assumptions about science and technology enabled profiling the Portuguese population into four distinct groups: the optimistic, the cautious, the sceptical and the pessimistic. Each profile implies a diverse range of intentions and attitudes regarding biobanks. Furthermore, we found that previous study of science could be an important predictor of the willingness to donate information to biobanks.
Autores principais:Riso, Brígida
Outros Autores:Santos, Mário J. D. S.; Ávila, Patrícia
Assunto:Biobanks Portugal Public attitudes Science Technology Biological samples Health data Willingness to donate
Ano:2025
País:Portugal
Tipo de documento:artigo
Tipo de acesso:acesso restrito
Instituição associada:Universidade de Lisboa
Idioma:inglês
Origem:Repositório da Universidade de Lisboa
Descrição
Resumo:Biobanks for clinical research collect human biological samples and associated data for biomedical research. The establishment of biobanks in Portugal is still an understudied phenomenon, although there are signs of a growing trend in setting up these repositories to support biomedical research. Among another factors, individuals’ willingness to donate samples and public trust in biobanks play a crucial role in sustaining biobanking activities. In this article, we analyse public attitudes in Portugal towards biobanking, based on data from the biotechnology survey conducted by Eurobarometer in 2010. Different assumptions about science and technology enabled profiling the Portuguese population into four distinct groups: the optimistic, the cautious, the sceptical and the pessimistic. Each profile implies a diverse range of intentions and attitudes regarding biobanks. Furthermore, we found that previous study of science could be an important predictor of the willingness to donate information to biobanks.