Autor(es): Fabbri, Margherita ; Caldas, Ana Castro ; Ramos, Joana B. ; Sanchez-Ferro, Álvaro ; Antonini, Angelo ; Růžička, Evžen ; Lynch, Timothy ; Rascol, Oliver ; Grimes, David ; Eggers, Carsten ; Mestre, Tiago A. ; Ferreira, Joaquim J
Data: 2020
Identificador Persistente: http://hdl.handle.net/10451/46304
Origem: Repositório da Universidade de Lisboa
Assunto(s): Parkinson's disease; Home care; Integrated care; Caregiver; Technology-enabled care
People living with Parkinson's disease (PwP) experience a wide range of motor and non-motor symptoms associated with increasing complexity of care delivery. A multispecialty approach has been presented as an intuitive solution for tailored and comprehensive care delivery. Nevertheless, past trials of both multidisciplinary or interdisciplinary care models in PD suggested no measurable change to a small benefit in quality of life (QoL) and failed to show economic sustainability. We propose a home-based community-centred integrated care (iCARE-PD) for PwP as a pragmatic solution to harness the potential of existing care resources using an integrated care strategy, enable self-management support and implement technology-enabled care. The iCARE-PD model is based on Freeman's concept of continuity of care and the expanded Chronic Care Model for organization of care strategies. A home-based community-centred integrated care has immediate implications for clinical practice, with potential benefits in rural areas or lower-income countries, by enhancing access to care with optimized costs. There is a need to establish which and how interventions may be used as an instrument of care in each local deployment of the iCARE-PD model. We put forward a multidisciplinary framework to generate the evidence supportive of its implementation as the standard of care in the future and delineate the core strategies to secure the implementation of this care approach across different health care systems to ensure feasibility and economic sustainability. We envision this model becoming a paradigm of personalized care transferable to people with atypical forms of neurodegenerative parkinsonism.
